Posted for a friend who's about to undergo something similar to the Incision and Drainages (I+D) that I have to do frequently for my skin condition.

Medical details herein )
Damn I hate having a pain condition. Been dealing with cysts for something like two weeks now - as soon as one heals up, another one blossoms. Maybe once school actually starts I'll stop worrying about it and the cysts will go away.

What's bothering me about them right now is the continual pain. Sure it's mild, but it's always there, and that's really draining on physical energy, emotional energy, and attention span. I regenerate a spoon maybe every hour or two, and then I promptly use it up making lunch. Or washing my lunch dishes. Or rotating some of the toys in Kappa's cage. Or even just making a list of all the things I have to be doing! I keep wanting to just sit down and cry from the pain and the frustration all together. But that would take a spoon I don't have.
I hate how stress causes skin flare-ups for me. (I have hidradenitis suppurativa if you've missed the other PSAs.)

Sources of stress )

Results of stress (a cyst) )
asterroc: (xkcd - Fuck the Cosine)
For those of you who aren't already familiar with my skin condition, hidradenitis suppurativa (HS), you may wish to skim that link. [ profile] framefolly, remember how I said the other day that you shouldn't post anything unlocked that you wouldn't get up in front of a room and tell your whole class? Well, my posts on HS are my exception to that rule, b/c I want to make the condition more well-known and remove the stigma from it. I *still* wouldn't stand up in front of a class and tell them about it, primarily b/c it's not relevant to the class, but I have talked about it with a couple individual students.

So, back to the reason for this post. I've got a cyst at the belt line. I haven't had one this big in months, that much is great, but getting one now isn't. It's probably *because* of pants that I have it in the first place - pants rub on your waist, but you don't ever notice it until you have a horrible painful bump right under that rubbing spot. How painful?

This painful: (photo) )

Yeah, I've never shown pictures of it before, not sure what prompted me to do so now.

I cannot wear normal pants b/c the belt line falls right atop the cyst. I can't wear low-rise jeans b/c the very top edge of the waist rubs against the bottom of the cyst. I can't even wear normal sleep pants, despite how soft they are. What I'm wearing right now is these cotton super thin sleep pants without elastic that are basically the scrubs you wear as a hospitial patient. I tie them very loose so they're nearly falling off my hips and then they're below the cyst enough that it only irritates a little. Yes, that's my pink undies you see right below the cyst, bikini style, that's how low I have to wear these sleep pants. And I'm currently wearing a sweatshirt without any elastic at the bottom, because again the elastic would rub on it. Even so, moving around too much hurts because your skin always flexes. (Never noticed that before, did you?)

So what do I wear to work? I had to dress nice today for a luncheon, so I found a long sleeve slightly formless dress (c/o the last chorus I was in), in black velvet(een?). Since it was black, I spruced it up with red and green so it wouldn't look like I was going to a funeral - it's appropriate for a NYC wedding instead. ;)

See? )

Tomorrow if it's clear I'm going to have to stay out late with a class doing an extra-credit observing session, so a dress is out. I'm debating wearing a dress during the day and changing into overalls, or just wearing overalls. I'm probably going to go with the overalls just b/c changing's ridiculous. I don't like dressing that sloppy, but I think it's warranted - overalls are also warmer than normal pants. Ooh, I can wear the ones Mom made me, out of really nice white tapestry material. If I already sewed the button back on, hm, maybe not. :-\

I hate my skin. Back to soaking it.



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