asterroc: (xkcd - Fuck the Cosine)
asterroc ([personal profile] asterroc) wrote2009-02-17 06:43 pm
Entry tags:

[HS] Pros and Cons

My standard link to more info about hidradenitis suppurativa


+ Bought a gel pack that can be heated in the microwave and can provide a longer duration of a reasonable temperature for a heat pack.
+ T$'s buying me gauze
- I need it so I don't stain my blouse when I go in to work tomorrow
+ the current cyst is getting better
- it's getting better by draining. ick.
- it's one of the worst I've ever had
- I'm between dermatologists
+ the pain is getting less. didn't need to OD on painkillers today, went mostly without since I wasn't moving much.
- have to remember to bring gauze and tape to work tomorrow to change my dressing so I don't stain my shirt.
- Have to decide whether to risk wearing a bra tomorrow (risk b/c of potential staining and having it rub the cyst), or go without (while it doesn't feel uncomfortable, it definitely looks a different shape and sometimes my nipples show).
- Wearing a tank top under whatever shirt would also risk rubbing against the cyst.


See also: spoon theory (.pdf file)

[identity profile] soapfaerie.livejournal.com 2009-02-18 05:48 pm (UTC)(link)
Oh hon. :(

I don't think i've ever seen an entry on this from you before. I'm sorry you have to go through it, sounds like a very unpleasant experience.

I know the Spoon Theory all too well and use it when explaining my own conditions.

Here's to quick healing!

[identity profile] zandperl.livejournal.com 2009-02-18 11:25 pm (UTC)(link)
Check my "skin" tag for more entries on it. I've been in remission the last few years, so the flare-ups aren't all that bad or frequent, but they still happen. This is actually one of the worst I've ever had (but I'm recovering) so I definitely need to find me a new derm, and maybe try Remicade again.

[identity profile] l0stmyrel1g10n.livejournal.com 2009-02-18 08:24 pm (UTC)(link)
i didn't realize before it was this bad. i'm ashamed to say i thought i "understood". i'm going to pray for you.

[identity profile] zandperl.livejournal.com 2009-02-18 11:26 pm (UTC)(link)
Thankfully I've been in remission for a few years, since I had the Remicade treatments. It does seem to be returning to the previous level however, so when I find me a new derm I'm going to ask about considering more treatments.

[identity profile] hitchhiker.livejournal.com 2009-02-22 02:32 pm (UTC)(link)
sorry you're going through that - it sounds horrible :(