My Name is Tammie Ferris and I have been doing activist work for the HS community for years now : ) Yes, I suffer with the same nasty thing you do. The dreaded HS.
I have run into several of your posts and see that you are currently into writing a letter to the insurance co to get approved for a drug for your HS. I am assuming it is Remicade or Enbrel.
Do you have the studies on the Remicade? Also I know several who have used Remicade for HS and maybe some of their personal comments would help? I don't know anyone who has really benefited from either of those drugs, but Its one of those things that may in fact help?
I tend to get a bit jaded about this as the studies will say "overwhelming success" or some such encouraging thing and then I talk to the real live people in the studies and it was far from it, then I get pissed off. I am sure you have researched this from her to Kingdom Come,but if you need any help or additional data and I can be off assistance, let me know. I am more then glad to help.
Tammie Ferris HS USA Trustee HS USA Help and Info Line 24/7 928-279-0833 HS USA Website is www.hs-usa.org tferris@citlink.net
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timeasmymeasure
Your HS
Date: 2005-12-11 03:15 pm (UTC)My Name is Tammie Ferris and I have been doing activist work for the HS community for years now : ) Yes, I suffer with the same nasty thing you do. The dreaded HS.
I have run into several of your posts and see that you are currently into writing a letter to the insurance co to get approved for a drug for your HS. I am assuming it is Remicade or Enbrel.
Do you have the studies on the Remicade? Also I know several who have used Remicade for HS and maybe some of their personal comments would help? I don't know anyone who has really benefited from either of those drugs, but Its one of those things that may in fact help?
I tend to get a bit jaded about this as the studies will say "overwhelming success" or some such encouraging thing and then I talk to the real live people in the studies and it was far from it, then I get pissed off. I am sure you have researched this from her to Kingdom Come,but if you need any help or additional data and I can be off assistance, let me know. I am more then glad to help.
Tammie Ferris
HS USA Trustee
HS USA Help and Info Line 24/7
928-279-0833
HS USA Website is www.hs-usa.org
tferris@citlink.net